ALS United Celebrates Signing of the ACT for ALS Reauthorization Legislation
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Members of ALS United gather in Washington, D.C.
Bipartisan legislation extends critical ALS research and expanded access programs through 2031
Our members brought the experiences of people living with ALS directly to policymakers and helped keep the need for action front and center.”
WASHINGTON, DC, UNITED STATES, November 4, 2026 /EINPresswire.com/ -- ALS United today celebrated the signing of the ACT for ALS Reauthorization Act of 2026 into law, extending critical federal programs supporting ALS research and expanded access to investigational treatments through fiscal year 2031.— Jerry Dawson, President and CEO, ALS United
The bipartisan legislation will allow programs established under ACT for ALS to continue supporting critical priorities for people living with ALS by accelerating the development of new therapies and expanding access to investigational treatments for people who cannot participate in traditional clinical trials. The reauthorization builds on the foundation established when ACT for ALS was first enacted in 2021, and supports continued progress across the ALS research and expanded access landscape.
“Today is an extraordinary moment for the ALS community,” said Jerry Dawson, President and CEO of ALS United. “ACT for ALS was built because people living with ALS and their families needed researchers, clinicians, government, and industry to work faster. This reauthorization gives those efforts continued support through 2031. We are grateful to everyone across the ALS community who helped make this possible.”
ALS United member organizations played a central role throughout the reauthorization effort. In May, ALS United members brought advocates to Capitol Hill for Hill Day, while others met with lawmakers in their home districts. ALS United also organized a congressional briefing and engaged with House and Senate committees, while advocates and coalition partners maintained grassroots outreach throughout the legislative process.
“Reauthorization reflects the incredible work by people living with ALS, families, caregivers, advocates, researchers, clinicians, and organizations across the country,” Dawson said. “Our members brought those experiences directly to policymakers and helped keep the need for action front and center. We are proud of what this community accomplished together.”
ALS United also recognizes the bipartisan congressional champions who helped advance the legislation, including Senators Lisa Murkowski and Chris Coons and Representatives Mike Quigley and Ken Calvert.
“Senators Murkowski and Coons and Representatives Quigley and Calvert provided important leadership throughout this effort, and we deeply appreciate their commitment to people living with ALS,” Dawson said. “We also thank the many members of Congress and congressional staff who worked across the aisle to get this legislation enacted.”
The reauthorization will allow these programs to continue while supporting new grant and research opportunities in the years ahead. ALS United will continue working with its member organizations, coalition partners, researchers, clinicians, and people living with ALS and their families to help sustain these efforts and build on the progress achieved under ACT for ALS.
Allison Nadeau
ALS United
+1 971-410-0075
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